~Jan~
Tuesday, April 3, 2012
WOW! What a day it was!! First, let me tell you that Rebecca did awesome! We were there for five hours which included a liter of saline, a bag with a steroid and anti-nausea meds, a bag with Benadryl and anti-nausea meds, a bag of the "C" , a bag of the "V", and another liter of saline. She did great, tolerated everything and ate every vegan snack she took with her. Dr. Amin made rounds and was amazed at her energy level although we both think the steroids helped! It is true what Jennifer mentioned earlier, if you want to get a perspective on what is truly important - visit an infusion room for a few hours. Those folks are happy to be there, to be alive! And there is no negative allowed - you can tell from their faces. We really can learn from the brave folks the true meaning of living. I am going to make a conscious effort to stop complaining about insignificant things and celebrate the glory of living! I am probably not going to post again until we are finished, we have two more days at CMC, but if this is what it takes to get through this, then this is what we do! Thank you all for your well wishes and prayers, we feel them each and every one! Please keep them coming and God bless each of you.
Monday, April 2, 2012
It has been four days since we got the news at Blumenthall Cancer Center. The day started out like all the days we get in the car and drive for scans, we are nervous and quiet. Rebecca was the first back for her CT scan, she had to drink her "cocktail" for imaging, but she did it. First the CT, then the brain MRI. Then, we head up to the 6th floor for RESULTS! I am not sure how there was room for anything in that elevator on the way, because I know that God was right there with us as we prayed. And can I just say that you could never ask for better people at Blumenthall - they love every single patient that walks in that door and it is evident in their voice and the look in their eyes! The silence between me, Rebecca, and Michael is deafening. No one is talking, we are just waiting for her name. Yet, when they call it out - we don't want to go.
Once we are in the room, we wait and wait and wait some more. Again, except for orders from Rebecca that no crying is allowed, there is no noise. I think I knew before we even got in the car to come what is going to happen in a few minutes. And when it does, I hold my breath and I feel every bit of hope physically leave my body. But, I don't cry because I promised I wouldn't. And I have to be strong for my baby girl. What happens is, first a nurse we don't know comes in, along with Rebecca's regular nurse, then Denise, Dr. Amin's right hand, and Dr. Amin himself. Dr. Amin never comes unless there is something to tell and we can tell that it is not what we want to hear. The tumors have continued to grow, there are new ones in the brain, there is a new one near the small bowel, and another near where her right ovary used to be. NO - I just want to scream it but I don't.
So I get out the iPod and begin to take notes. I know that they will give us all of this information in print form but this mother needs something to do. So we listen to what we will do next. No surgery now, she is not having symptoms. No radiation in the brain, she has had all she can have right now. And no waiting to see if the ipi does its job eventually. (Normally, after the four rounds of ipi, patients wait around 8 - 12 weeks to see if it is working). Rebecca's doctor does not want to wait, he wants to do chemo now. So we are going to have a port put in and start chemo and it is aggressive and it will probably make her sick and ... wait for it ... her hair is going to fall out. That makes us all smile because my child has a beautiful bald head now, well except for a few wisps that blow in the wind. And all of this is going to happen soon - like in four days. And all I can do is continue to breath, watch her, and pray that I don't question God.
Rebecca is going vegan and she is starting on Monday. She bought more kale than I know what to do with, along with other organic fruits and vegetables. She is ready! So, today Rebecca and Jennifer woke up at 5:00am and went to Blumenthall to have the port put in. Jennifer managed to deal with sitting in a chair in the cold room for 6 hours while Rebecca slept during the procedure. Then, after I ran around collecting things Rebecca might need during and after chemo ( like a bucket and a word search book) I helped peel, wash, chop, dice, and package all of the produce. She has her green smoothie mix in a bag, ready to dump in her juicer. And she has her snacks packed for Blumenthall. I will get all of the graham crackers tomorrow. And tomorrow, we do what has been in the back of our minds since we began - chemo. We are dreading it and I am so afraid of how it is going to make her feel. Will her food taste bad? Will she be able to eat? Will her counts drop too much? ? ? ? ? ? ? ?
This is a lot to process for us. Rebecca is tired but positive. Jennifer is angry and sad. And I am angry, sad, heartbroken, and wishing I could do this instead of her. But, there is good literature that says vegan will bring great results so I will support her. And Jennifer has done her research which she shares with us. And we trust her doctors are doing what needs to be done. I am supporting her 100% in all of her decisions. And I will continue that irregardless of what others might think. It is very easy to judge from the outside looking in. And yes, we have had some who do not agree with our choices. We don't get info out quick enough, we don't call enough, we don't just "get over it and deal with it" and the best one, we don't realize how serious this is. Well let me tell you all, we most definitely get how serious this is and that is why we do it the way Rebecca wants. If you want to know something, just ask. If you'd like to talk to Rebecca, call. But please remember and respect her enough to know that some days, we just don't want to talk about melanoma. Rebecca is fighting with all she has and she is positive about everything! Please respect her right to do that.
Thank you for all of the prayers, the well wishes, the monetary help you've given. Rebecca and Michael appreciate the support so much. We all do and we depend on that spiritual support you send to us through your prayers. Please call on all of your prayer warriors to pray for Rebecca tomorrow as she goes into one of the toughest parts of treat thus far. Chemo is no walk in the park but we are gonna do what we have to do! Thank you and God bless you all. Please feel free to share with everyone - Rebecca can never have too many praying for her.
~Jan~
Wednesday, March 28, 2012
First let me state for the record that I am not the least bit jealous that Jennifer's blog is so good!! LOL If you know us three, you understand that comment, if you don't, rest assured it is tongue in cheek.
Now, I want to say that I have been writing boring posts with "just the facts" for a couple of reasons. (Yes, my children pointed out that they were BORING) First, I wasn't sure Rebecca was really ready for me to put it all out there. Second, and maybe this should be first, I wasn't sure I was ready to put it all out there. This is the hardest thing I believe I have ever faced in my life. And I am afraid constantly that it will get harder! And I go to work every day and I smile, deal with kids and teachers, and then I go home and sink into my couch and I don't smile.
I am not going to write a long piece tonight, but I will say that I am ready to put it all out there. I don't know what that will look like but it is going to be real, at the very least. We have a big day tomorrow and NO one wants to see the Charlotte skyline tomorrow but we have no choice. I am prepared, the best I can be but I am also scared and heart broken that one of my precious girls has to go through this. I am also heart broken that my other precious girl has to stay home, work and wait.
We know that God's plan for Rebecca is written. We know He is in control and we have to let him be in control, whether the mama in me likes it or not. So for now, we are asking for all prayers from all of our prayer warriors. And good or bad, a post will be done as soon as I can; to update you all. Thank you for carrying us through this journey. We didn't want to take it but we are happy you are here with us.
Jeremiah 29:11 ~Jan~
Now, I want to say that I have been writing boring posts with "just the facts" for a couple of reasons. (Yes, my children pointed out that they were BORING) First, I wasn't sure Rebecca was really ready for me to put it all out there. Second, and maybe this should be first, I wasn't sure I was ready to put it all out there. This is the hardest thing I believe I have ever faced in my life. And I am afraid constantly that it will get harder! And I go to work every day and I smile, deal with kids and teachers, and then I go home and sink into my couch and I don't smile.
I am not going to write a long piece tonight, but I will say that I am ready to put it all out there. I don't know what that will look like but it is going to be real, at the very least. We have a big day tomorrow and NO one wants to see the Charlotte skyline tomorrow but we have no choice. I am prepared, the best I can be but I am also scared and heart broken that one of my precious girls has to go through this. I am also heart broken that my other precious girl has to stay home, work and wait.
We know that God's plan for Rebecca is written. We know He is in control and we have to let him be in control, whether the mama in me likes it or not. So for now, we are asking for all prayers from all of our prayer warriors. And good or bad, a post will be done as soon as I can; to update you all. Thank you for carrying us through this journey. We didn't want to take it but we are happy you are here with us.
Jeremiah 29:11 ~Jan~
Tuesday, March 27, 2012
Ok, so let’s go back to the end of July 2011. I’m visiting from Jacksonville and Barron Estates is having a neighborhood yard sale. Becca is in her 3rd month of dieting/exercising (around 60 pounds down at this point). We decide to walk the neighborhood and shop at the same time, kill two birds with one stone if you will. Bad idea, we ended up with about 25 pounds of crap by the time we made it back and it was nearly 105 degrees. But back to the story, Becca is telling me that when she exercises her armpit hurts. The armpit that had lymph nodes removed back in 2008. We talked about how it was probably scar tissue but that she would get it checked out just in case. Boy, we didn’t know things were about to change. The end of August came and the biopsy showed what we were denying… Melanoma… AGAIN. So surgery was scheduled for the week after Labor Day. We (me and CJ) spent the weekend before visiting again, celebrating the college football kick off and listening to a very old man talk about how sugar feeds cancer (a precursor maybe). Surgery went well and I left glitter flowers for delivery ;). The prior PET scan showed two hot spots (ovary and armpit) and now one was gone. Another doctor decides that the ovary has to go too just to be sure. Surgery is set for mid October, this one is my duty. It was probably the longest and most draining day of my life. The doctor meets with us after hours of waiting and talking to an old couple, the news is bad. The ovary was full of Melanoma. Melanoma- I’m really despising you at this point. Back to the couple, they weren’t a couple as in married, they were friends waiting on the man’s wife (she was having a tumor removed also) but the cute thing about them was that they entertained me most of the day with gossip and probably 200 snacks. Leave it up to the grandma to come prepared, I really enjoyed getting to know them. So the rest of the day we wait for Becca to get to recovery. Michael and I begged the receptionist to send word that we wanted to tell her so she wouldn’t have to sit alone after she found out the news. I really wish that some of these very vivid memories would fade by the way. Finally after several more hours we go back to see Becca. The first words out of her mouth are “I’m sorry I keep having Melanoma.” We give her a pep talk and hours later get to go home, Cancer free at this point. Oh and Michael promised that night, that the can of dip he had would be the last, I heard it with my own ears, 5 ½ months later, he is still dipping (yep, I’m putting him on blast so that maybe he will make good on his promise J). That night was pretty comical. The day before surgery Becca had to be on a liquid diet. We made it fun by eating Japanese miso soup and Rita’s for lunch and Olive Garden soup broth for dinner, but when we got home Becca was starving; she ate everything and then some. We still laugh about what her face looked like when her stomach started filling up, I can imagine it was painful, but reminiscing about it is hysterical. 6 weeks and a month of Interferon go by, now it was time for the initial 3 month scan. Tuesday, melanoma in 5 spots in the body, Thursday melanoma in the brain. Again I wish the details of these moments and conversations would go away. I don’t want to remember the sad stuff. So our fight continued through December and 15 days of brain radiation. Two weeks into radiation Becca’s hair starts to hurt so Brooke (our fab stylist) comes in after hours to cut it very short. One week later, the day after Christmas we headed to a local barber shop for a buzzed Mohawk. The hair had become a “nuisance.” Radiation finishes, Becca gets to ring the bell to signify completed treatment, and the staff gives her an award, great day. Three weeks later (2 days after I moved home), Becca has a seizure. The evening of my first day at the new job is spent waiting for news at CMC. More specific brain radiation is the next step and countless pills for various things. During January until now she has also been doing Ipilimumab infusions. I had the pleasure of accompanying her to one of these treatments. The chemo and transfusion room is something everyone should experience. The room is full of “sick” people but they all have such a glow about them. Just seeing them will make you appreciate everything you have been given. Another great moment that is memorable for me was when Becca’s nurse came to tell us her labs were good. We gave a high five to each other and another supporter that I could see over Becca’s shoulder looked over to us and smiled. I think he was feeling that sense of appreciation I just told you about, however later on he read to his wife, out of a gigantic cancer book, several negative things about cancer, poor lady. I bet he tells her facts all day long. :P Now here we are, at the end of March, several surgeries, treatment, bad days, and good days later. Our story isn’t over yet, stay tuned for more. J
The dirty details: We LOVE glitter. I have many sympathy symptoms and it’s crazy. We laugh at people’s reactions and make jokes about Becca’s 6 hairs (ok, there are probably 20…jk). So many people have surprised us in both positive and negative ways. Believe it or not relationships have been severed because of the change in priorities. I’m the family researcher, so when Mom or Becca has a question about something Melanoma related I look it up (there is a lot of negative and unrelated information on the web). Our faith is stronger than ever. You are all important to us. And please wear sunscreen!!
<3 Jen
Monday, March 26, 2012
I would like to share a snippet of our life with you. I am hoping this will put a smile on your heart. As you know, Rebecca had beautiful red hair that went to the middle of her back. Radiation makes your hair hurt and then it falls out, so now she has a beautiful head with wisps of red hair growing back. She says occasionally that she misses her hair but she stands up straight, she smiles that gorgeous smile, and goes about her day with a positive outlook. Yesterday, Jennifer and I stopped by to see her for minute. Rebecca came out to Jennifer's car to chat and the most amazing thing happened. She felt the wind moving her hair. Now that was a precious moment! Isn't this what it is all about, a simple thing like the wind blowing through your hair.
Big thanks to all who donated and showed up at the benefit rummage sale for Rebecca. A special thanks to Howard, Missy, and Banks - we could not have done it without you. Special thanks to Nita, the best neighbor anyone could have - you helped more than you know. And to Aunty Lou Lou - you already know!! Everyone who bought, who donated, who contributed, it is so very much appreciated and it humbles all of us, but especially Rebecca. She is in constant amazement at how loved she is.
~Jan~
Sunday, March 18, 2012
I am sorry I am just posting after Rebecca's last infusion. She did great, blood work looked good and we are praying fervently that the "ipi" is fighting hard to do its job against those melanoma cells. She will go in on the 29th for the first scan since we started the ipi and we appreciate your continued prayers. We will meet with the doctor at approximately 10:45 for the report from the scans. I promise to update as quickly as I can.
My sister Mary Lou is sponsoring a rummage sale with a lot of help from her friends. The money and donations raised will go toward helping Rebecca with her medical expenses. We are thankful to all everyone who is helping with this. It will be on March 24th. My FB page has the details.
As I close I am going to ask each of you to do us a favor. Please do not leave home naked, wear sunscreen! It is an important part of prevention against Melanoma. Thank you and God bless each of you for your continued support of Rebecca and our family.
Love, Jan
My sister Mary Lou is sponsoring a rummage sale with a lot of help from her friends. The money and donations raised will go toward helping Rebecca with her medical expenses. We are thankful to all everyone who is helping with this. It will be on March 24th. My FB page has the details.
As I close I am going to ask each of you to do us a favor. Please do not leave home naked, wear sunscreen! It is an important part of prevention against Melanoma. Thank you and God bless each of you for your continued support of Rebecca and our family.
Love, Jan
Wednesday, March 14, 2012
Wow, it has been about three weeks since my last post! Rebecca is doing very well. She is positive and outgoing. She is true testimony to what really matters and how to live it. Tomorrow she will undergo her fourth (I think) infusion. Please gather all prayer warriors and join us as we pray for good blood work and a smooth infusion. I will update tomorrow and let you all know how things went. Thank you again for your prayers and thoughts. Believe me when I say, I feel them. We all feel them and are blessed beyond measure. Thank you will never be enough.
Saturday, February 25, 2012
Just a quick update - Rebecca did great on Thursday. Her labs came back good and that wonderful "ipi" was infused. Thank you for your prayers during that day.
She is hoping to go back to work next week, for a few days, possibly 10 - 15 hours. She will be building her hours slowly, week by week. I know that she will do great! And I know Rebecca's clients are anxiously awaiting her return.
Thank you all for your prayers, we have the most awesome warriors!
~Jan~
She is hoping to go back to work next week, for a few days, possibly 10 - 15 hours. She will be building her hours slowly, week by week. I know that she will do great! And I know Rebecca's clients are anxiously awaiting her return.
Thank you all for your prayers, we have the most awesome warriors!
~Jan~
Wednesday, February 22, 2012
I know that it has been a while since my last post, but when I tell you the "crud" has hit - it hit with a vengeance. I have coughed so hard that I am surprised I have not cracked a rib. I am finally on the second round of new meds and they are finally working. But on with the show, cause this is not about me.
Rebecca has done great. She has had a few side-effects from the Ipilimumab infusion, but they were mild compared to some. She has dry skin and mouth sores. The mouth was the worst. But we Googled it and she had her nurse call in a prescription for magic mouthwash! Wow, it really is magic. There are still issues with her mouth and tongue, but now she can eat. We aren't sure of the total make-up in this magic elixir but whatever they have in there, she likes it.
She is having some trouble with anxiety but we are learning to talk through those moments. I have battled this for years, so fortunately (I guess) I can help with teaching her how to do that. No one want to deal with this issue, but if I can help her figure out her triggers quicker than I learned mine - better for her.
Rebecca goes to CMC tomorrow for her third round of the ipi and Jennifer has kindly taken a day off so she can accompany her. We are praying that her blood counts are great and they just hook her up and start infusing her body with that great tumor fighting juice. Please continue to pray with us beginning at 9:45 tomorrow.
A huge thank you to all of you who remember her in your prayers and spread her name through prayer groups all around the world. Thank you for the cards, the gift cards, the donations, and the kindness you continue to show us. It has been amazing and eye opening to see who shows up when you need something the most. We continue to pray for those around us who are also suffering with illness, family illness, or other issues spoken or not.
There are blessings that we would have never known if not for this cancer. While we all want the cancer gone forever - the blessings are treasured gifts. And, if you don't know what really counts in this confusion we call life, it won't take you long when something happens that knocks you to your knees and takes your breath. And the strength that you find to deal with all of this - not sure where we get it but thankfully it is there when we need it. Both of my girls are strong women and they prove it time after time. This is no different - Rebecca is fighting this with all she has and Jennifer is standing right by her side! This cancer has met its match in those two - I know I would not want to go up against either of them.
Please continue to remember Rebecca and our family in your prayers. Please continue to share Rebecca's name to all you know. We can feel those prayers and while there are moments that we feel tired or afraid, we definitely feel you right then. WE are grateful more than words can express and blessed to call you prayer warriors with us. May God continue to bless all of you!
~Jan~
She is having some trouble with anxiety but we are learning to talk through those moments. I have battled this for years, so fortunately (I guess) I can help with teaching her how to do that. No one want to deal with this issue, but if I can help her figure out her triggers quicker than I learned mine - better for her.
Rebecca goes to CMC tomorrow for her third round of the ipi and Jennifer has kindly taken a day off so she can accompany her. We are praying that her blood counts are great and they just hook her up and start infusing her body with that great tumor fighting juice. Please continue to pray with us beginning at 9:45 tomorrow.
A huge thank you to all of you who remember her in your prayers and spread her name through prayer groups all around the world. Thank you for the cards, the gift cards, the donations, and the kindness you continue to show us. It has been amazing and eye opening to see who shows up when you need something the most. We continue to pray for those around us who are also suffering with illness, family illness, or other issues spoken or not.
There are blessings that we would have never known if not for this cancer. While we all want the cancer gone forever - the blessings are treasured gifts. And, if you don't know what really counts in this confusion we call life, it won't take you long when something happens that knocks you to your knees and takes your breath. And the strength that you find to deal with all of this - not sure where we get it but thankfully it is there when we need it. Both of my girls are strong women and they prove it time after time. This is no different - Rebecca is fighting this with all she has and Jennifer is standing right by her side! This cancer has met its match in those two - I know I would not want to go up against either of them.
Please continue to remember Rebecca and our family in your prayers. Please continue to share Rebecca's name to all you know. We can feel those prayers and while there are moments that we feel tired or afraid, we definitely feel you right then. WE are grateful more than words can express and blessed to call you prayer warriors with us. May God continue to bless all of you!
~Jan~
Tuesday, February 7, 2012
Please let me say - I apologize to all of Rebecca's friends. When I thanked all for helping, I left out her friends. I didn't mean to, I just typed and posted and then ... Thank you, thank you, to all of Rebecca's friends. Thank you to CJ's mom, Lisa too! So generous, and you know who you are! God bless you all.
~Jan~
~Jan~
Monday, February 6, 2012
First, let me say thank you to all of you out there reading and praying and spreading the word. WE appreciate you!
Rebecca had a great week, last week! She had an infusion on Wednesday and that "ippi" is gonna kick this! We just believe it. The only side effects she has had are more prone to bruising, indigestion, and mouth sores. The bruising can be prevented if she is careful in her movements, but we know Rebecca is full on 100% so.... As for the indigestion, she has always loved to burp the loudest, ever since she was a little girl, so we just laugh our way through and she also has a prescription that we hope will help some. Last, the mouth sores. I Googled and found that doctors often prescribe "magic mouthwash" for patients. Rebecca called her NP and yes, they do!! She has some and so things are looking up there as well.
She is the most positive person all the time. Rebecca deserves every good thing possible. She has been overwhelmed with the generosity of my friends, Jennifer's friends, and my family. WE appreciate everything so much. As a mother, I have a ton of things to worry about - it doesn't stop just because they are grown women. The little things you are all doing, the prayers world wide - there are not words to tell you how much it means to all of us. This mama has her moments and it seems that someone is there every time, whether by phone or message, just when I need it. While the focus is for Rebecca's complete healing, it is nice to know that you remember Rebecca's sister, Jennifer and me as well. We are in this fight with her.
Please keep those prayers coming my warriors. And please feel free to share the word that Rebecca Renee' Lee Adair is gonna win this fight! God bless each and every one of you.
~Jan~
Monday, January 30, 2012
Rebecca had a great visit today with her neurologist. She also learned that her "ippi" infusion will be Wednesday not Thursday, as first scheduled. Bring on the big guns!! She is feeling great and ready for someone to say, "yes, you may drive again!" Thank you all for your continued prayers, we feel them wrap around us. Keep on praying with us!
~Jan~
~Jan~
Sunday, January 29, 2012
Rebecca has done great since her radiation treatment on Friday. She is tired, but radiation makes a body tired. Otherwise, she is doing great. We will not know the results of the treatment for about 6 weeks, but we are praying daily for her to be completely healed. She will also receive her second transfusion on Thursday. Come on "ippi" and do the deed!
I have encouraged Rebecca and Jennifer to help me fill in the blanks between August and now. They are "gonna" do it soon. If not, I will begin a timeline to help you know where we have been and where we are heading. Thank you for your prayers, we are grateful beyond words. Have a blessed Sunday.
~Jan~
Friday, January 27, 2012
This is our small attempt to share our journey through the blessings and struggles that our family is facing. While we don't profess to know every curiosity and we might not share every dirty detail, we realize that our friends - our warriors, want updates. And to be quite honest, there are times we are not in the mood to talk. Quite frankly, we are also exhausted more often than not, which makes it hard to remember to update FB or make that call.
So the way this will work is the three of us, Rebecca, Jennifer, and me (Jan) will post whenever we have news or thoughts about what is happening. A timeline of sorts. We will attempt to remember to "sign" our individual posts. I hope you will laugh with us, cry with us, and finally get what so many of you have asked for since we began this trip in August 2011. And share this with your friends, your fellow prayer warriors, cause frankly we want them all on our side. The only thing we require is that you are kind to one another. Strap on your seat belts cause this is sure to be a bumpy ride. Jeremiah 29:11
So the way this will work is the three of us, Rebecca, Jennifer, and me (Jan) will post whenever we have news or thoughts about what is happening. A timeline of sorts. We will attempt to remember to "sign" our individual posts. I hope you will laugh with us, cry with us, and finally get what so many of you have asked for since we began this trip in August 2011. And share this with your friends, your fellow prayer warriors, cause frankly we want them all on our side. The only thing we require is that you are kind to one another. Strap on your seat belts cause this is sure to be a bumpy ride. Jeremiah 29:11
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